Crouzon Sydrome: Treatment
Treating Sleep Apnea:
There are various degrees of sleep apnea, and a small amount of sleep
apnea can be considered normal. The amount of sleep apnea that is normal
varies with age. There are also two kinds of sleep apnea, central and
obstructive. Central apnea basically occurs when the brain "forgets" to
breathe. It may be caused by cerebellar tonsillar herniation (sometimes
called a "Chiari Malformation"), or it just may occur on it's own. Obstructive
apnea occurs with a narrowed or blocked airway, and is the most common
cause in Crouzon syndrome. If a child is found to have significant sleep
apnea, there are different treatments that may be prescribed.
The first treatment for sleep apnea is medication. There are a number
of medicines that can open up a partially blocked airway in order to make
breathing easier. There is also a medicine that can help central apneas
(as long as it isn't caused by cerebellar tonsillar herniation). The next
step, if medications are not completely successful, is to remove the tonsils.
If the tonsils are to be removed, it is usually a good idea to leave in
the adenoids to help with speech. Frequently, if the sleep apnea is not
too severe, a tonsillectomy will be all that is needed. The last option,
short of major surgery, is a CPAP or BiPAP mask. This is a facemask that
is worn at night, which delivers a rush of air, each time the child breaths
in. It usually works very well when worn, however, most parents find it
difficult to keep on a child all night. Typically, children, end up pulling
the mask off, sometime in the middle of the night, making this treatment
not very effective. If none of the above treatments work, then surgery
is recommended to bring the midface forward.
Other Crouzon Syndrome Treatments:
Skull Surgery
| Midface Surgery
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