Treacher Collins Sydrome: Treatment

The First Year of Life:
After a child is born with Treacher Collins syndrome, the child should undergo a hearing screening as soon as possible. Children born with absent ears typically have at least a 40% hearing loss. For these children, it is very important for them to be evaluated early for a bony conductive hearing aid. We now know that the early sounds babies hear, are critical for normal speech development.

It is also important to evaluate the palate, and assess palatal function. Some children who do not have an obvious palatal cleft may still have what is called a "submucous cleft." This is a condition where the muscles normally found in the roof of the mouth are oriented in a different way. These children need to be closely followed by a speech pathologist, for sometimes they may require surgery to enable them to speak normally.